I am not crazy.
Well, I am, but not about this seizure shit.
My dad flew in today to go to the neurologist's office with me. To say I was freaking out would be putting it mildly. I have managed to more or less ignore this whole seizure situation for the last seven or eight years. I figured I had it under control. Until the ER doctor told me that 4-5 seizures a year was NOT controlling the situation.
So, reluctantly, I went off to see the head doctor. I had these visions of him telling me I was completely nuts to saying that there wasn't a thing wrong with me and that it was all in my head. (heh heh) Plus I was a little nervous, because this particular neurologist did not have the best of reputations.
Well let me tell you, I really liked the guy. He had me when he said "you had CAT scan? It verified that there was a brain in there?" Ah, a doctor who gets my sense of humor.
He did a thorough work up and asked me about my seizures. In the end, he decided that I have Focal seizures. (or Partial Seizures) Basically, the seizure affects the right side of my brain, but presents on the left side. Numbness, tingling, twitches, etc are mostly confined to the left side. That doesn't mean that I can't or haven't had Full seizures that affect both sides, I have, but that the majority of them happen to zing me on the right. I guess kind of like a guy's dick. you know, they usually hang to one side or the other.
So, now I am on medication. Right now I am taking Topamax. Eventually I will work up from one to four pills a day. He also has me taking Valium as needed (it helps with the tingling and such) and he also put me on Maxalt for migraines.
The thing is, you would think I would feel better about this, but I don't and here are my reasons why:
1. I FUCKING HATE DRUGS - of any kind
2. I loath the idea that I need to be dependent on any kind of medication to live a "normal" life.
3. I really, really don't like it that I will forever have seizure associated with my name. You know, just in case, I need to tell the people around me for my own protection. Do not call an ambulance, do not try to hold down my tongue, etc.
4. I was just anally raped at the drug store. I have wonderful health insurance, but even so, I just spent over a hundred dollars on close to six hundred dollars worth of medication. Granted, the Maxalt will last me for like a year, but the Topamax is like a FORFUCKINGEVER kind of thing. The next time I go into the pharmacy, I am just going to lift up my skirt and grab my ankles. I'm gonna get fucked one way or another.
5. I have to have an EEG. Uh, me and hospitals are not good together. Me and weird electrodes and gels have an even bigger issue with one another.
6. I will need to be under medical care for the rest of my life.
7. A bunch of other shit that I haven't thought of yet.
So here I sit, at midnight, and I still haven't taken that first dose of medicine. It's like I am admitting that I have failed my own body somehow. I know I am not making sense, but that's how I feel.
The thing is, I know it could be worse and I keep telling myself that very thing. But I CANNOT help the way I feel about the situation. Maybe in time, I will see things differently, but right now I do not. And I really don't want to hear any platitudes. I know I sound like a bitch, but I have never argued otherwise.
On a better note, my dad has been wonderful. He was allowed in the examining room and asked questions that I hadn't thought of. I have a sister (not blood related) with epilepsy, so my dad knows a lot about the subject and was a big help. Plus it's nice to just have him here with me. I said that we don't get to spend much time together, so this is great, no matter the circumstances.
Thank you all for your kind comments on my last post. Because of my schedule and the way that my brain has been scrambled lately, I haven't been able to respond to any comments, but I really felt your good wishes and prayers coming through today.
All my best,
ADW